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Pediatric Foundation of the Lehigh Valley, Inc.
 
 
 
Max
"He is expecting to get his new eye at the beginning of October 2016."
- Max's mom, Tina
To help PCFLV continue to support kids like Max and their family, please donate in Max's honor.
 
 
30 Days/30 Stories
September is Pediatric Cancer Awareness Month. At PCFLV, we are committed to spreading the GOLD all year long. However, in September, we truly make it our mission. 30 Days, 30 Stories celebrates the children we know and love and the brave battles they fight and have fought, with their families by their sides. In celebrating these beautiful children and their stories, we hope to inspire you to join us in our mission to SPREAD THE GOLD in September and all year long!

September 13th
Max was born on November 11, 2011. On March 4, 2012, Max was brought to Wills Eye Hospital. At 4 months old, he was diagnosed by Dr. Carol Shields and her team with bilateral retinoblastoma, a rare pediatric eye cancer. We noticed a white glow in Max's right pupil, which lead us to taking him to the eye doctor. Max had a large tumor in his right eye, which detached his retina, leaving him blind in that eye. There was also a significant amount of fluid, damaging the eye. There were 4 or 5 small tumors in his left eye, but he still had vision in that eye. Max immediately began chemo at Children's Hospital of Philadelphia. He had 6 rounds of chemo over the course of 6 months. In June 2012, he began having EUA's—examinations under anesthesia, at Wills Eye Hospital. During these exams his ocular oncologist performed laser and cryo treatments to the tumors in his eyes. Between the chemo and EUA's, the tumors shrank considerably, and the fluid in his right eye dissipated, and his retina reattached and he regained some vision. In December 2012, the tumor in his right eye began to reform and he had to receive radiation through a plaque, placed on his eyeball. Eight months after the radiation plaque, his doctor noticed the radiation site was severely damaged and was bleeding, causing retinopathy. Max lost what vision he had in his right eye, due to the hemorrhaging. In December 2013, the blood was gone, and a retina specialist fixed the lining of his retina. In June of 2015, he had cataract removed and later had it fixed. An entire year later, in June of 2016, during a routine EUA we were told his right eye needed to be removed. It came as a huge shock and blow to us. Although the cancer had not come back, the threat of it coming back was there, and the doctor did not have a clear view to the tumor. If it came back, it would be undetected. Also, the eye was so severely damaged, it would eventually cause extreme pain. He is expecting to get his new eye at the beginning of October 2016. He wears glasses to protect his good eye. He also wears hearing aids in school due to high frequency hearing loss complements of one of the chemo drugs he received.

Please join our team sMiles for Max at the annual PCFLV 5K Walk/8K Run to Live, in honor of our RB hero and for all kiddos fighting pediatric cancer.

-written by Max's mom, Tina


More 30 Days/30 Stories
Day 12: Sammi
Day 14: Owen