September is Pediatric Cancer Awareness Month. At PCFLV, we are committed to spreading the GOLD all year long. However, in September, we truly make it our mission. 30 Days, 30 Stories celebrates the children we know and love and the brave battles they fight and have fought, with their families by their sides. In celebrating these beautiful children and their stories, we hope to inspire you to join us in our mission to SPREAD THE GOLD in September and all year long!
March 27, 2017 is a day that changed our lives forever. Colin went to the Pediatrician for what we thought was an unresolving ear infection, though my mommy instincts were telling me something more serious was going on. Then the look in the doctors eyes said it all after she examined him and we immediately went for bloodwork. Our biggest fear was confirmed, Colin was diagnosed with Acute Lymphoblastic Leukemia. One phone call from our doctor, and we rushed to the hospital and he got admitted to PICU that night to receive multiple blood transfusions. After that night, he was transferred to the regular pediatric floor, which we ended up calling home for the next 4 weeks. Our little boy who loves reading, coloring, animals, cars, sprinting around the yard, singing and dancing a few days earlier, was now pale and laying in a hospital bed with a cancer diagnosis.
Information comes at you like a whirlwind, and your emotions go from unbelievable optimism one minute to incredible pain the next. We said multiple times, as I'm sure every parent does..."You never think it would happen to your child." When your child is sick, everything feels out of your control. We tried to focus on things we could control. Decorating his room on Day #2 of his hospitalization with Mickey Mouse & PJ Masks, bringing his favorite books, coloring supplies and stuffed animals from home. The nurses, doctors, and other hospital staff were amazing and truly helped us make that hospital room our home away from home. He was so excited when the day came for us to go home and he could see his kitties. Mom & dad were excited and anxious at the same time.
Now Colin's time is filled with spending time with his grandparents, mommy & daddy (instead of daycare), and his kitties. He has weekly clinic visits from now until probably around New Year's. He actually enjoys going to clinic so he can play with the trains and the other kids there. Since the beginning of treatment, he has endured several different types of chemo (including mommy giving injections at home), lumbar punctures, and blood transfusions. We know that there is still a long road ahead. Through all of this, he has kept singing & dancing to Disney music, kept his amazing sparkle in his eyes, kept a smile on his face, and has kept his crazy hair (for now). He still runs around like the sweet & wild 2-year-old that he is (probably has more energy than mommy & daddy!). He gets his "tubie" put in like a champ! And when the nurses take it out he says he is "all better". We cannot wait for the day that we can finally tell him that he really is all better when "tubie" comes out. He is truly our little superhero!
We have had such an amazing amount of support from friends, family, and PCFLV and we are so grateful for all of it!
-written by Colin's mom, Lindsay